Part of the reason for this blog is also to keep tabs on changes/progress for ourselves, so we can look back and say “oh yeah, that was happening then!” As a result, I’ll be including some kinda boring factual updates vs. musings. Here’s one:
We’ll revise our focus for the coming month to… WALKIN’! On Tuesday we borrowed a very cool walker called the “Kidwalk” and so will be practicing with it while we have it. A has backwards down pat, so we’re working on taking steps to move forward. He does a cute fluttery-feet thing now but think he’ll get the hang of it soon. The advantage of this walker, compared to others, is that there isn’t anything in front of him so he can walk right up to a table, etc. and be able to reach stuff easily. It also has a bit of bounce (A loves to jump) and is quite sensitive so moves/turns easily. Pics to come. Oh, and for added coolness, the back wheels light up with pretty colours!
Re: our neurology appointment, which was also on Tuesday, A’s med situation will stay the same as his weight hasn’t changed and he’s at the max dose of clonazepam for his size. Adding valproic acid was recommended, to treat the new drop seizures, but we decided to wait on that as the drops don’t harm him and aren’t happening that often. Adding another medication has its own set of cons so it’s always weighing one against the other – treatment vs. symptom. It’s hard to read a list of possible side effects and come out the other end saying “sure I’ll give that to my kid.” We’ll at least wait to see if things settle into any kind of pattern as right now the seizures are relatively new and inconsistent.
A also had an eye test, just for the heck of it, and all is well there. The Dr. was over 2hrs behind schedule so our day in the big city ended up being…. looong and waiting-roomy. Twelve hours later, we were home.